Monthly Archives: December 2014

Blog Updates and Future Meetings

Hello Everyone!

Our consortium is continuing to grow and prosper this year as a result of all the hard work our members are doing across the state. I have been able to make additional contacts for us in California, through the California Association for Physical and Health Impairments (CAPHI). CAPHI is another great resource that is available to us as OI teachers. They hold a conference every two years in different locations in California and are hosting webinars for OI Teachers through the Council for Exceptional Children. I highly recommend that you look into CAPHI and what they offer as they are a very large organization for OI Teachers in California. It’s great to see what other organizations, similar to ours, are doing to promote our field and support our teachers and students. You can visit their Facebook Page at:

https://www.facebook.com/caphionline

You can also visit their website at:

http://www.caphi.org/

Also,

I have added several new links that were provided at the recent GATE conference on December 5, 2014 in the links section, under the Assistive Technology section. The link to the GATE wikispaces site provides all of the information that was given by the presenters. If you were not able to attend this conference, the link will provide you with a chance to see what was presented as well as all of the materials that were given to the participants. I also have included links to two of the presentations that I attended, Tips and Tricks for OI Teachers by Renee Dawson, Debbie Brineman, and Jim Whitley of Cherokee County, and a presentation by Lee Green of the Floyd County School System on FREE Google apps and extensions that would be of great use to us. Lee is also the co-leader of the Google + Georgia Educators Group. This is a great AT resource utilizing Google supported apps and extensions that are incredibly useful to us as OI teachers. The GEG is a great networking opportunity and hosts meetings as well for further collaboration.

Please check out these new links! I have also provided links regarding these presentations under the useful apps tab.

Additionally, don’t forget to visit the Georgia Tools for Life website, their link is provided as well. They presented on many topics including accessing funding for AT, and other resources that are useful to us such as new AT equipment and resources that are now available. Their website includes all of the presentations that they gave at the conference, as well as an archive for all of their webinars.

Lastly, I have included a link to Parent 2 Parent of Georgia in the links section. This is a great organization that provides free resources and training to parents, students, and teachers of children with disabilities, across all age ranges and disability areas.

A quick re-cap of our remaining meetings for 2015:

January 14, 2015:

A panel discussion/seminar at the Scottish Rite campus for Children’s Healthcare of Atlanta regarding various disabilities and their educational implications for students within the school environment. The program information will be provided very soon!

March 19, 2015:

Susan Ruediger of the Charcot-Marie Tooth Association will be presenting information and resources regarding CMT, a peripheral nerve disorder that affects at least 2.8 million people world wide, and hundreds of thousands of people here in Georgia. We will also be given a re-delivery of the GATE presentation by Renee Dawson, Debbie Brineman, and Jim Whitley of the Cherokee County School System on useful apps and Google extensions. The location is to be determined.

Here is the link to the Charcot-Marie-Tooth Association for more information on CMT:

http://www.cmtausa.org/

May 14, 2014

Kyle Pease, of the Kyle Pease Foundation, will be presenting at Georgia State for our May meeting. He will cover various topics, including the mission and resources available through the foundation.

Here is the link to the Kyle Pease Foundation for more information:

http://www.kylepeasefoundation.org/

Thank you for reading this long blog post, and I hope the information provided is useful.

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Meeting Minutes October 2014

Below are the minutes for the October 2014 Consortium Meeting and the link to the materials that were given to us at the meeting from Laurie Smith of Parent 2 Parent of Georgia. Please share these materials to parents and teachers who need additional resources for students that are approaching their post-secondary transition.

Parent 2 Parent of Georgia-Transition to Adult Healthcare Materials

Georgia OI Consortium Meeting Minutes

October 16, 2014

Parent 2 Parent Presentation by Laurie Smith:
Transition to Adult Healthcare: Learn what health has to do with transition; who makes up the transition team and their roles, how to incorporate health transition into a medical home, healthcare financing, legal issues and timelines.

More information: www.p2pga.org (handout Alphabet Soup) P2P supports Georgia families and individuals from birth to age 26 with disabilities or health care needs.  Statewide training agency required by IDEA in GA.  Also Family to Family Health Information Center.  Special Needs Database online to help find services. Supporting Parent Program can help parents feel less isolated.  Provide one-on-one assistance for parents that would rather call than look online.  Free trainings (2 or 4 hours) all parent friendly.  Facebook page for youths transitioning to adulthood to connect with others who have gone through the transition.  Also have a parent FB page to connect.  Monthly e-blast to highlight upcoming events and news from P2P.

What is Health Transition?  Moving from pediatric to adult healthcare; moving from dependence on family to independence.  A plan is important because it breaks down tasks, ensures continuity of care, fosters independence, and helps them maintain better health as an adult.  Health transition plan differs from IEP transition plan.  It is not mandatory and is a parent/caregiver/youth responsibility, not an IEP team decision.  The health transition team members may never meet physically during the development of the plan.  (see Planning WS)  Members of the transition team include: youth, parent/caregiver, pediatrician, primary care doctor, adult providers, and educators.  Role of the child is to find their voice and learn self-advocacy and self-management.  Laurie discussed self-advocacy and self-management and barriers to them that youth may face.  Parent/Caregiver plays the role of the coach or spokesperson (non-verbal students) for their child.  Parents should help their child develop the skills they need to manage their medical care (if appropriate) such as: scheduling appointments, refilling medications, documentation, insurance knowledge, and medical decision making.  Website: www.healthtransitionsny.org Primary care doctors can continue seeing children in the practice after they transition to adults.  If they are a pediatrician, they may have good recommendations for finding a new adult doctor.  They can provide a health summary for the child transitioning to an adult doctor.  Educators/Teachers can help make the health transition plan become a part of the IEP transition plan and embed some health related goals into their IEP or transition plan to help them get ready for this transition (i.e. calling in a prescription, process to obtain power of attorney).  Medical home (handout)- not a physical place but is a family centered approach to care, coordination, and partnership.  All health related services and supports are engaged to keep the welfare of the youth in mind.  All providers are aware of the plan of care for the youth.  If child has a chronic condition, make sure they understand how the condition can/will impact them in the future.  Renee suggested using an ICE/medical alert app for students.  She suggested the ICE Standard app that creates an emergency alert on the phone’s home screen.  If the child has a mental health need, then there needs to be a circle of support in place for the child once they are away from home.  If the child has a developmental disability, the scaffolding of support needs to be in place before going away from home.  Healthcare financing- age 26 = off of parents’ healthcare, Medicaid could end after 18 depending on disability- apply for SSI (automatically receive Medicaid).  Katie Beckett and Peach Care expire at 18 years old.  Medicare only covers certain disabilities.  Help youth understand the age of majority- signing contracts, free credit cards, register to vote.  Send parents to P2P for information on guardianship and power of attorney.  Transition timeline (WS on back of Parent Health Transition WS)