Meeting Minutes October 2014

Below are the minutes for the October 2014 Consortium Meeting and the link to the materials that were given to us at the meeting from Laurie Smith of Parent 2 Parent of Georgia. Please share these materials to parents and teachers who need additional resources for students that are approaching their post-secondary transition.

Parent 2 Parent of Georgia-Transition to Adult Healthcare Materials

Georgia OI Consortium Meeting Minutes

October 16, 2014

Parent 2 Parent Presentation by Laurie Smith:
Transition to Adult Healthcare: Learn what health has to do with transition; who makes up the transition team and their roles, how to incorporate health transition into a medical home, healthcare financing, legal issues and timelines.

More information: www.p2pga.org (handout Alphabet Soup) P2P supports Georgia families and individuals from birth to age 26 with disabilities or health care needs.  Statewide training agency required by IDEA in GA.  Also Family to Family Health Information Center.  Special Needs Database online to help find services. Supporting Parent Program can help parents feel less isolated.  Provide one-on-one assistance for parents that would rather call than look online.  Free trainings (2 or 4 hours) all parent friendly.  Facebook page for youths transitioning to adulthood to connect with others who have gone through the transition.  Also have a parent FB page to connect.  Monthly e-blast to highlight upcoming events and news from P2P.

What is Health Transition?  Moving from pediatric to adult healthcare; moving from dependence on family to independence.  A plan is important because it breaks down tasks, ensures continuity of care, fosters independence, and helps them maintain better health as an adult.  Health transition plan differs from IEP transition plan.  It is not mandatory and is a parent/caregiver/youth responsibility, not an IEP team decision.  The health transition team members may never meet physically during the development of the plan.  (see Planning WS)  Members of the transition team include: youth, parent/caregiver, pediatrician, primary care doctor, adult providers, and educators.  Role of the child is to find their voice and learn self-advocacy and self-management.  Laurie discussed self-advocacy and self-management and barriers to them that youth may face.  Parent/Caregiver plays the role of the coach or spokesperson (non-verbal students) for their child.  Parents should help their child develop the skills they need to manage their medical care (if appropriate) such as: scheduling appointments, refilling medications, documentation, insurance knowledge, and medical decision making.  Website: www.healthtransitionsny.org Primary care doctors can continue seeing children in the practice after they transition to adults.  If they are a pediatrician, they may have good recommendations for finding a new adult doctor.  They can provide a health summary for the child transitioning to an adult doctor.  Educators/Teachers can help make the health transition plan become a part of the IEP transition plan and embed some health related goals into their IEP or transition plan to help them get ready for this transition (i.e. calling in a prescription, process to obtain power of attorney).  Medical home (handout)- not a physical place but is a family centered approach to care, coordination, and partnership.  All health related services and supports are engaged to keep the welfare of the youth in mind.  All providers are aware of the plan of care for the youth.  If child has a chronic condition, make sure they understand how the condition can/will impact them in the future.  Renee suggested using an ICE/medical alert app for students.  She suggested the ICE Standard app that creates an emergency alert on the phone’s home screen.  If the child has a mental health need, then there needs to be a circle of support in place for the child once they are away from home.  If the child has a developmental disability, the scaffolding of support needs to be in place before going away from home.  Healthcare financing- age 26 = off of parents’ healthcare, Medicaid could end after 18 depending on disability- apply for SSI (automatically receive Medicaid).  Katie Beckett and Peach Care expire at 18 years old.  Medicare only covers certain disabilities.  Help youth understand the age of majority- signing contracts, free credit cards, register to vote.  Send parents to P2P for information on guardianship and power of attorney.  Transition timeline (WS on back of Parent Health Transition WS)

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